Society
Who are we?
The Society consists of volunteers who work from our homes and utilise technology to bring this information to you, so distance is no barrier!
Services provided:
Information and education on Haemochromatosis.
With a membership subscription you will receive our 64 page booklet "A Practical Guide to Haemochromatosis" and 4 newsletters per year as part of your membership.
We have a reference library, including videos, and other resources are available if required.
Telephone support is very important and this service is available after hours for long distance callers.
If possible we will put you in touch with other members in your area.
There are small chapters in some rural areas and states.
Local Brisbane members can visit in situ.
Membership:
Full membership: $30 annually,
Concessional membership: $20.
Membership fees cover the immediate family:
(Spouse and Siblings)
Apart from the FREE edition of the booklet you receive as part of your membership, additional copies of "A Practical Guide to Haemochromatosis" can be purchased for $21.35 per copy including postage.
Resources from overseas:
See Web links for the following resources:
"Guide to Hemochromatosis": — Iron disorders Institute USA.
"The Bronze Killer": — Marie Warder. Canada.
"The Iron Elephant": — Roberta Crawford. IOD USA
Why join a support Group?
Where else can you go where people can understand what you are talking about?
Knowledge is a powerful tool...
Empower yourself to manage your own health condition...
To gather knowledge and be able to talk intelligently to your doctor...
Hope and encouragement are important gifts of the group...
People discover it is okay to care about oneself...
Anger, grief and loss are common feelings that are okay to discuss.
The Society* is a registered Non-Profit organisation, operated wholly by volunteers with the goal of increasing the awareness of Haemochromatosis in the general public.
We are an official Gift Recipient Organisation which means that all donations over A$2.00 are tax deductible in the Commonwealth of Australia.
History of the Group:
On March 11th 1990, an informal group of seven interested people met in Brisbane, Queensland to discuss the establishment of a support group for sufferers of Haemochromatosis. We looked at the name, the structures, processes and strategies that would take place.
On February 3rd 1991, the first formal meeting was held and office bearers were elected with a management committee being formed at the same time.
The support group was officially approved by the Queensland State Government's Department of Justice on July 17th 1991 **.
From this humble beginning, the Society now has over 1000+ current members in all mainland states and territories of Australia as well as members in New Zealand, the Philippines and other overseas countries.
The Society at this time is purely voluntary and relies on its membership fees and donations to help in the promotion of awareness of Haemochromatosis to the Medical profession as well as the public in general.
*Formerly known as Haemochromatosis Information Service & Support Group Inc.(HISS)
** This was the first time a support group for Haemochromatosis sufferers had existed in Australia.
Copyright: Haemochromatosis Society Australia Inc.
This work is copyright. Apart from any use as permitted under the "Copyright Act 1968", no part may be reproduced by any process without express permission from the Haemochromatosis Society Australia Inc.
ABN: 79827 140 617
Written and compiled by:
Mrs Margaret Rankin AM Grad Dip Hlth Sc
Medical Advisor:
Lawrie Powell AC MD PhD, Professor of Medicine
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